Survival Journeys

Though strokes often have common effects, each one is also different. And each stroke survivor's journey is as unique as the individual themselves. Survival Journeys features stories by and about stroke survivors, sharing their experiences and insights.


 

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Teri Ackerson's Why

Being a stroke coordinator for a hospital in the Kansas City area helped her know what to do and stay calm when she experienced a stroke herself in 2013.

Working My Way Back

My journey started on September 8, 1995 at 5:30 p.m. I was 47. I got up from my chair and said I did not feel good and then collapsed onto the floor.

Poems of a Recovery Journey

As a rehab patient, I found a spiral notebook and kept a journal of my feelings and experiences during this totally unexpected set of circumstances. I wrote these three poems to share encouragement with anyone who needs it.

Walking the Runway to Recovery

2011 was a tough year - but after surviving kidney failure, a stroke, seizures, high blood pressure and a Lupus diagnosis, Deborah Williams advice is to never give up.

When You Can't Just Do It: Motivation Magic

“When I saw that I could still entertain people, that’s when the light went on that there was hope for the future, even if I had to do it from a wheelchair. Entertaining people gave me a purpose.” He did his first post-stroke magic show at a school three months after leaving rehab.

Survive Thrive & Lead

Dr. Donna Arnett, past president of the American Heart Association/American Stroke Association, has a couple of firsts to her credit: the first epidemiologist to be president of the organization and the first stroke survivor.

From a Wheelchair to a Corvette

After much hard work and determination, Bill Perrick mastered a new set of wheels after a stroke.

Reinventing Myself

Strokes are devastating because they take so many things from us, but they do not have to rob us of our essence.

Who Am I?

A stroke changes so many things so quickly. Survivor Dorcas Sutton explores questions of what it has done to her own identity.
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Archive »For Survivors

Post-stroke Dental Care

Dental care is a conglomeration of fine-motor skills, so stroke can have an impact on a survivors’ teeth and gums, and that in turn can increase stroke risk.

When They Don't Know What They Don't Know

Sometimes stroke survivors appear to be in denial about some effects of their stroke. But what if their refusal to recognize a deficit isn’t denial, or any other psychological response? Anosognosia refers to a person’s lack of awareness of their own deficits. It can happen in people with stroke.

Maintain What You Gain

A year or two out from therapy, survivors may feel progress has stopped or that they’ve lost some of their rehab gains. That would be a good time to get some more therapy. For survivors on Medicare, it is part of their benefits.

Helping Others Understand: Post-stroke Central Pain

We know that it can sometimes be hard for family and friends to understand how profoundly post-stroke central pain may be impacting a survivor. We encourage you to share this article with the people in your life to help them understand.

Helping Others Understand: Post-Stroke Central Pain Fact Sheet

It can sometimes be hard for family and friends to recognize how much post-stroke central pain may be affecting a survivor. We’ve created a quick-reference sheet that you can share with family and friends to help them better understand.
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See allReturning to Work

Stroke Survivor Goes Back to Work . . . for Herself

As I approach the eighth anniversary of being in private practice, I think about how it all came about and how if I hadn’t had a massive hemorrhagic stroke, I might not have been so bold as to open my own business.

The ADA Turns 25

Starting in the ’70s, the disability rights movement learned an important lesson from the civil rights movement and got organized. Their goals were the elimination of attitudinal, communication, transportation, policy and physical barriers so as to integrate people with disabilities into society.

Returning to Work After Stroke

For many younger survivors, going back to work is often the measure for recovery. Here's some excellent guidance if you're working toward getting back into the workplace.

Working My Way Back

My journey started on September 8, 1995 at 5:30 p.m. I was 47. I got up from my chair and said I did not feel good and then collapsed onto the floor.
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Departments

Stroke Notes

Stroke-related news you can use about new scientific findings, public policy, programs and resources.

Readers Room

Articles, poems and art submitted by stroke survivors and their loved ones.

Life Is Why

Everyone has a reason to live a longer, healthier life. These stroke survivors, caregivers and others share their 'whys'. We'd love for you to share yours, too!

Everyday Survival

Practical tips and advice for day-to day living after stroke.

Life At The Curb

A unique perspective on survival by comedian and stroke survivor John Kawie.

Simple Cooking

Cooking at home can be a daunting task, but a rewarding one for your diet and lifestyle (and your wallet). Making small changes in your diet is important to your heart health. Here are simple, healthy and affordable recipes and cooking tips.

Support Showcase

Our new department highlighting the good work being done by stroke support groups from around the nation. If you are part of a successful support group we should consider featuring, let us know!