Survival Journeys

Though strokes often have common effects, each one is also different. And each stroke survivor's journey is as unique as the individual themselves. Survival Journeys features stories by and about stroke survivors, sharing their experiences and insights.


 

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Poetic Expressions of Living with Aphasia

Voices of Hope for Aphasia sponsored a “poetry bash” in March 2018. The poems on these pages are from that event; the opening essay is by Dr. Hinckley.

Rehab Boogaloo

It was time for graduation day — one last session of physical and occupational therapy for final evaluations. Piece of cake, right? Wrong. Survivor Vince Selasky shares the "dance" of his stroke rehab experience.

How I Have Moved Forward

Ten years ago, she was a junior in college, thriving academically, happy, healthy and an avid runner. Little did she know things were about to take an unexpected turn that would change her life forever.

Hello, Goodbye

Comedian and stroke survivor, John Kawie, offers his thoughts on job opportunities for some of the “helpful” people he’s experienced since his stroke.

Finding New Talents

Gerhard Endress was a watchmaker for over 50 years, but a stroke took that away. While helping others with brain injuries, he discovered that he is a painter. Now he has a line of cards … and a lot satisfaction.

Helping Others Understand: Post-stroke Central Pain

We know that it can sometimes be hard for family and friends to understand how profoundly post-stroke central pain may be impacting a survivor. We encourage you to share this article with the people in your life to help them understand.

Blood Clots Trigger Stroke in Teen

Like many teenagers, Jillian Marks had a flair for the dramatic as she navigated adolescence. Then she encountered real drama, provided by a word that young people don’t expect to hear: stroke.

No Coincidence

Her 3-year-old, Alexis, had been up all night crying because of a terrible ear ache when Sarah decided to take her to the emergency room at 3 a.m.. As she filled out Alexis’ admission forms, she lost feeling on the right side of her body.

Wild Thing

Comedian and stroke survivor, John Kawie has the perfect stroke survivor dog, Travis. But Travis has a friend …

Finley the Service Dog: A Story of True Love

Finley, my Golden Retriever service dog, was rescued as a puppy, but ultimately, I was the one rescued by him. He is a hard worker, always ready to do his job, a constant AND faithful companion.
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Archive »For Survivors

Post-stroke Dental Care

Dental care is a conglomeration of fine-motor skills, so stroke can have an impact on a survivors’ teeth and gums, and that in turn can increase stroke risk.

When They Don't Know What They Don't Know

Sometimes stroke survivors appear to be in denial about some effects of their stroke. But what if their refusal to recognize a deficit isn’t denial, or any other psychological response? Anosognosia refers to a person’s lack of awareness of their own deficits. It can happen in people with stroke.

Maintain What You Gain

A year or two out from therapy, survivors may feel progress has stopped or that they’ve lost some of their rehab gains. That would be a good time to get some more therapy. For survivors on Medicare, it is part of their benefits.

Helping Others Understand: Post-stroke Central Pain

We know that it can sometimes be hard for family and friends to understand how profoundly post-stroke central pain may be impacting a survivor. We encourage you to share this article with the people in your life to help them understand.

Helping Others Understand: Post-Stroke Central Pain Fact Sheet

It can sometimes be hard for family and friends to recognize how much post-stroke central pain may be affecting a survivor. We’ve created a quick-reference sheet that you can share with family and friends to help them better understand.
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See allReturning to Work

Stroke Survivor Goes Back to Work . . . for Herself

As I approach the eighth anniversary of being in private practice, I think about how it all came about and how if I hadn’t had a massive hemorrhagic stroke, I might not have been so bold as to open my own business.

The ADA Turns 25

Starting in the ’70s, the disability rights movement learned an important lesson from the civil rights movement and got organized. Their goals were the elimination of attitudinal, communication, transportation, policy and physical barriers so as to integrate people with disabilities into society.

Returning to Work After Stroke

For many younger survivors, going back to work is often the measure for recovery. Here's some excellent guidance if you're working toward getting back into the workplace.

Working My Way Back

My journey started on September 8, 1995 at 5:30 p.m. I was 47. I got up from my chair and said I did not feel good and then collapsed onto the floor.
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Departments

Stroke Notes

Stroke-related news you can use about new scientific findings, public policy, programs and resources.

Readers Room

Articles, poems and art submitted by stroke survivors and their loved ones.

Life Is Why

Everyone has a reason to live a longer, healthier life. These stroke survivors, caregivers and others share their 'whys'. We'd love for you to share yours, too!

Everyday Survival

Practical tips and advice for day-to day living after stroke.

Life At The Curb

A unique perspective on survival by comedian and stroke survivor John Kawie.

Simple Cooking

Cooking at home can be a daunting task, but a rewarding one for your diet and lifestyle (and your wallet). Making small changes in your diet is important to your heart health. Here are simple, healthy and affordable recipes and cooking tips.

Support Showcase

Our new department highlighting the good work being done by stroke support groups from around the nation. If you are part of a successful support group we should consider featuring, let us know!