In 2013 the Stroke Support Group of Southeast Georgia morphed into brainREConnect and became inclusive of survivors of traumatic brain injury, Parkinson’s, multiple sclerosis and those experiencing primary progressive aphasia. Their goal is to address the isolation survivors and their families experience.
Stroke Survivors Empowering Each Other, Inc. (SSEEO) offers support but isn’t your traditional stroke support group. Founded in 2004 by survivors, caregivers and other stroke stakeholders as a patient-support advocacy group, SSEEO has grown into a nonprofit that provides advocacy, support, education and resources to stroke families.
In the 1970s, Dr. Herbert Johnson of Casa Colina Rehabilitation Center in southern California knew that stroke could be incredibly isolating for both survivors and their families. He believed that isolation affected a survivor’s emotional wellbeing as well as their physical recovery. In an effort to prevent social isolation and regression, Johnson teamed up with colleague Sharon Meyers to create the Glendora After Stroke Support Group in 1973.
When speech-language pathologist Jerome Kaplan started an aphasia support group in 1990, he knew there was a need, but he never expected it to last 25 years. In June 2015, the Aphasia Community Group in Boston celebrated its silver anniversary.